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Stories

Sharing experience with syndrome is important for both those in need and those who share information.

Emppu, endometriosis, 19 years.

My period started when I was 14. Before that, I wondered why I didn't have my period already, as all my friends had theirs. In hindsight, I'm grateful that I didn't start my period at the age of 11 because after the first six months, I had already experie

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Jenni, endometriosis, 27 years.

I'm Jenni, a 27-year-old battling endometriosis. I've had stomach problems all my life, more or less. Until my twenties, the stomach problems didn't really limit my life.

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Nanne, endometriosis, 25 years.

My endometriosis started to show symptoms as soon as my period started. For a long time, I had no idea that the severe pain and heavy bleeding were in any way abnormal.

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Nancy, endometriosis, 30 years.

I remember that when I was young, I was looking forward to my first period. After all, all the other girls’ periods had already started. Now that I think about it after all these years, I wish the whole period hell never started.

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Asta, vulvodynia, 31 years.

It was 2007, and I had just moved to Tampere to start my studies. On the very first day of school, my attention was drawn to a boy with black, fluffy hair and a picture of my favourite band’s lead singer on his T-shirt.

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Teresa, PCOS, 30 years.

In 2013, I mentioned to my doctor that my dream for the near future was to start a family. My sister was diagnosed with endometriosis at the time, so there was a high probability that I would have it, too.

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Marjukka, adenomyosis, 53 years.

Two years ago, my gynaecologist diagnosed me with adenomyosis. I have never had endometriosis, so for me, the disease is not associated with endometriosis.

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Riikka, PCOS and vulvodynia, 28 years.

PCOS has probably been a part of me since before I was born. I think I inherited the tendency from my grandmother, although, of course, no one can say for sure.

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